48 Mann St
Cheektowaga NY 14206
Phone:  716-725-3212

Allied Disorders Support Groups

Allied Disorders Support Groups



Fatty Oxidation Disorders Support Group

Deb Lee Gould, MEd
Director, FOD Family Support Group
MCAD Parent and Grief Consultant
2041 Tomahawk
Okemos, MI 48864
Phone 517-381-1940
'We Are All in This Together'

Glutaric Acidemia Organization

R.D. # 4 Box 299A

Blairsville, PA 15717

Phone 724-459-0179




Bharat Ramanujam




MSUD Family Support Group

Sandy Bulcher, Director

Powell, OH

Phone 740-548-4475




National Organization for Rare Disorders

55 Kenosia Avenue

P.O. Box 1968

Danbury, CT  06813-1968

Phone 203-744-0100

Fax 203-798-2291



National Urea Cycle Disorders Foundation

4841 Hill Street

La Canada, CA 19011



Organic Acidemia Association

13210 35th Avenue North

Plymouth, MN  55441

Phone 763-559-1797

Fax 763-694-0017



Parents of Galactosemic Children, Inc.

1519 Magnolia Bluff Drive

Gautier, MS 39553

Email email


WyoMed Campaign
"Promoting awareness of metabolic diseases in the State of Wyoming and lobbying for the allowance of mandated metabolic expenses paid by health insurance companies."


Kenneth Allen  Email:



Upcoming Events

2011 Events

Support Our PKU Awareness events and activities!

Click on the link below to get more information about 2011 Events. See our new 2011 T-shirts under "Items for Sale"! !