MACPAD
48 Mann St
Cheektowaga NY 14206
Phone:  716-725-3212

Allied Disorders Support Groups

Allied Disorders Support Groups

 

 

Fatty Oxidation Disorders Support Group

Deb Lee Gould, MEd
Director, FOD Family Support Group
MCAD Parent and Grief Consultant
2041 Tomahawk
Okemos, MI 48864
Phone 517-381-1940
'We Are All in This Together'
www.fodsupport.org
 Email deb@fodsupport.org


Glutaric Acidemia Organization

R.D. # 4 Box 299A

Blairsville, PA 15717

Phone 724-459-0179

Email Larry@glutaricacedemia.org

 

Homocystinuria

Bharat Ramanujam

Email bharatrama@yahoo.com

 

 

MSUD Family Support Group

Sandy Bulcher, Director

Powell, OH

Phone 740-548-4475

Email dbulcher@aol.com

 

 

National Organization for Rare Disorders

55 Kenosia Avenue

P.O. Box 1968

Danbury, CT  06813-1968

Phone 203-744-0100

Fax 203-798-2291

Email orphan@raredisease.org

 

National Urea Cycle Disorders Foundation

4841 Hill Street

La Canada, CA 19011

 

 

Organic Acidemia Association

13210 35th Avenue North

Plymouth, MN  55441

Phone 763-559-1797

Fax 763-694-0017

Email oaanews@aol.com

 

Parents of Galactosemic Children, Inc.

1519 Magnolia Bluff Drive

Gautier, MS 39553

Email email list@galactosemia.org

 

WyoMed Campaign
"Promoting awareness of metabolic diseases in the State of Wyoming and lobbying for the allowance of mandated metabolic expenses paid by health insurance companies."

Website: http://www.wyomedcampaign.org

Kenneth Allen  Email: wyomedcampaign@usa.com

  

 

Upcoming Events

2011 Events

Support Our PKU Awareness events and activities!

Click on the link below to get more information about 2011 Events. See our new 2011 T-shirts under "Items for Sale"! !