48 Mann St
Cheektowaga NY 14206
Phone:  716-725-3212

Virginia Harrison

Vice President

Virginia, who has PKU, is vice president of MACPAD. She joined MACPAD in October 2009 to be more involved in the PKU community and to work with patients and families just like her. Previously, she spent over six years as MACPAD’s representative to the National PKU Alliance (NPKUA) and has contributed to MACPAD’s newsletter.


Professionally, Virginia spent over seven years in the fundraising industry, working for Penn State University and the Philadelphia Mural Arts Program. She is currently pursuing her Ph.D. in fundraising communication at Penn State. In her free time, she enjoys running half-marathons and watching sports of all kinds with her husband and retired racing greyhound. Her favorite low protein foods include broccoli burgers, veggie pizza, and French fries.


PKU has shaped Virginia’s career interests and personal attitude toward life. "PKU was never a burden for me, but simply another facet of life," she says. "Of course, at times it is frustrating, but I know I can handle anything that life throws at me because I have been able to handle PKU. I want to give back to the PKU community and help others who don't view PKU so positively."